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Impacts of Food Hypersensitivities on Quality of Life in the UK and Willingness to Pay (WTP) to remove those impacts

Appendix L. Condition-Specific Measures of Adult Quality Of Life, Additional Analysis.

Additional analysis of quality of life scale

Respondents were asked to complete a health-related quality of life scale appropriate to their self-reported food hypersensitivity:

  • Food Allergy Quality of Life Questionnaire (FAQLQ) for food allergy.
  • Food Intolerance Quality of Life Questionnaire (FIQLQ) for food intolerance.
  • Coeliac Disease Quality of Life scale (CDQoL) for coeliac disease. 

The FAQLQ and FIQLQ are rated on a scale from 1 (least impairment on quality of life) to 7 (maximal impairment on quality of life). 

The CDQ is rated on a five-point scale, with the 20 items scores summed – having a range of 20-100.

Each scale consists of food hypersensitivity specific subscales. 

For those completing the FAQLQ, these are: 

  • Allergen Avoidance and Dietary Restrictions (AADR), which considers the impact that a restrictive diet has on quality of life and the impact this also has on social activities; 
  • Emotional Impact (EI) relating to the worries and concerns about having an allergic reaction or consuming allergens; 
  • Risk of Accidental Exposure (RAE), relating to vigilance and awareness needed to avoid ingesting allergens; and 
  • Food Allergy related Health (FAH), relating to specific health anxiety about having an allergy or reaction.

For the CDQ, subscales comprise of: 

  • limitations, relating to social and dietary limitations of having coeliac disease; 
  • Dysphoria, related to negative feelings of having coeliac disease; 
  • Health Concerns, concerns about the wider impact having coeliac disease will have on health; and 
  • Inadequate treatment, feelings that there are not enough treatment options for the disease.

For the FIQLQ scale, subscales comprise: 

  • Emotional Impact (EI), related to the stresses and concerns of having to be aware of foods that could cause a reaction; 
  • Social and Dietary restrictions (SDR), related to the impact that having an intolerance has on diet and social activities (for example, eating out); and 
  • Reactions and Avoidance (RAv), related to negative feelings about having a reaction (for example, embarrassment and discouragement).

The distribution of the subscales, in aggregate and by characteristics are displayed in this Appendix.

FAQLQ subscales
Table 1.  Summary statistics: FAQLQ Index by domain

Domain Mean Std. Dev. N min p25 Median p75 max
FAQ total 4.76 1.49 385 1.14 3.66 5.1 6 7
FAQ AADR 4.87 1.57 385 1 3.73 5.09 6.18 7
FAQ EI 4.88 1.62 385 1 3.71 5.14 6.29 7
FAQ AE 4.78 1.63 385 1 3.5 5.13 6.13 7
FAQ FAH 4.06 1.63 385 1 3 4 5.33 7

Figure 1. FAQLQ Index by domain

Annex L Figure 1Annex L Figure 1.1Annex L Figure 1.2

CDQ subscales

Table 2.  Summary statistics: CDQ Index by domain

Domain Mean Std. Dev. N min p25 Median p75 max
CDQ total 48.35 16.91 601 20 34 47 61 95
CDQ Limitations 24.74 9.12 601 9 17 24 31 44
CDQ Dysphoria 6.66 3.1 601 4 4 5 8 19
CDQ Health 12.2 4.61 601 5 9 11 15 25
CDQ Inadequate 4.76 2.51 601 2 2 4 7 10
Annex L Figure 2.1Annex L Figure 2.2Annex L Figure 2.3

FIQLQ subscales

Table 3.  Summary statistics: FIQLQ Index by domain

Domain Mean Std. Dev. N min p25 Median p75 Max
FIQ total 4.49 1.53 440 1.06 3.28 4.62 5.72 7
FIQ EI 4.55 1.55 440 1 3.38 4.81 5.75 7
FIQ SDR 4.5 1.69 440 1 3 4.67 6 7
FIQ RA 4.34 1.57 440 1 3 4.5 5.5 7
Annex L Figure 3.1Annex L Figure 3.2Annex L Figure 3.3